Hi Kenna,
Nine months sure is a long time for the e-tube. You’ve done well and been very diligent in taking care of him. That being said, I would reconsider a surgical option and ask for a referral to a specialist. Once they can evaluate him, they will have a better grasp on the big picture and may have some suggestions for you.
Best of luck in getting Ernie some additional help.
Dr. Ryan Llera